Rising Expectations: The Developmental Disabilities Act Revisited. Rising Expectations: The Developmental Disabilities Act Revisited. Overview and Cross- Cutting Issues. Introduction. Methodology. History and Context of the Act. University Centers for Excellence in Developmental Disabilities. CEO Mike Kaiser founded People’s Care based on the philosophy of “Personal Choice, Community Involvement and Dignity.” Today, the People’s Care mission is: “To Provide Excellent Support and Advocacy for Individuals. Programs and services for people with disabilities. Introduction. Program Goals. History and Context. How the Program Operates. Core Grant. Leveraging Other Funding Sources. Five- Year Plans. Consumer Advisory Committee. Areas of Emphasis. National Training Initiatives on Critical and Emerging Needs. Accomplishments. Strengths and Weaknesses. Long History and Stable Programs. Community based programming has long been touted as the best approach to inclusion and social integration for individuals with disabilities. As vital members of their communities people with disabilities need well coordinated. NATIONAL ADULT DAY SERVICES ASSOCIATION (NADSA) CAADS is a proud member of the National Adult Day Services Association. Three representatives from California currently serve on the NADSA Board of Directors: Corinne Jan, RN. Interdisciplinary Focus. University Affiliation. Technical Assistance Center. Consumer Input. Follow the Lead of the DD Act. Major Issue. State and Territorial Councils. Introduction. Program Goals. History and Context. How the Program Operates. Independence from State Interference. Structure and Function of the Council. Five- Year Plan Guides Activities. Program Performance Report (PPR)Key Principles. Council Areas of Emphasis. Leveraging Resources. Accomplishments. Development of a National Council Network. At Easterseals, we believe that friendship, fun and play pave the way for a full life. That’s why we are so proud to be the largest provider of recreation and camping services for people with disabilities in the United. Disease Prevention and Health Promotion. The California Department of Aging’s Disease Prevention and Health Promotion Program (Title IIID) is federally funded under the Older Americans Act. Federal and state funds. Visibility. Training of Self- advocates and Their Family Members. Participation in National Disability Rights Activities. Historical Trends. Fiscal Effort. Strengths and Weaknesses. Positioning Within State Government/Independence from Interference. Flexible Resources. Organizational Longevity. Ability to Set State- Specific Priorities. National Network Partnership. System Navigation and Family Support. Major Issues. Governor's Influence. California MENTOR’s day programs offer an array of engaging activities and supportive therapy that help the adults we serve become increasingly independent. A Word About the Survey From a Special Prosecutor The findings from the 2012 National Survey on Abuse of People with Disabilities are an indictment of our entire criminal justice system. While these documented failures are not. Thanks to UCP’s Adult Day Program, Victoria is learning to speak up for herself and has even become a peer advocate. Read more about our clients. Home >> Adult Day Care in California There are about 1419 adult day care providers in California. Cities in California. Lack of National Leadership on Issues. Lack of Authority or Resources to Impact State and Federal Systems. Funding/Resources. Need for Improved Technical Assistance to DD Councils. Current Monitoring and Evaluation Activities. Performance Reported Through ADD Annual Report. Outcomes as Measured by GPRA Process. Promising Practices. Leadership in Policymaking. Leveraging. Systemic Change Activities. Demonstrating New Service Approaches. Recommendations. Chapter 4. Protection and Advocacy for Individuals with Developmental Disabilities. Introduction. Program Goals. History and Context. How the Program Operates. Intervention Strategies. Areas of Emphasis. Funding. Setting Priorities. Accomplishments. Strengths and Weaknesses. Authorities. Administrative Structure. Fragmented Funding Structure. Coordination with Other Agencies. Major Issues. Funding Level. National Policy for People with DDSupport from ADDCurrent Monitoring and Evaluation Activities. Promising Practices. Information and Referrals. Self- advocacy Skills. Individual Litigation. Recommendations. Chapter 5. Projects of National Significance. Introduction. Program Goals. History and Context. How the Program Operates. Accomplishments. Strengths and Weaknesses. Major Issues. Current Monitoring and Evaluation Activities. Monitoring and Technical Assistance. Evaluation. Promising Practices. State of the States in Developmental Disabilities. Residential Information System Project. Access to Integrated Employment: National Data Collection on Day and Employment Services for Citizens with Intellectual and Developmental Disabilities. Partners in Policymaking. Home of Your Own. Recommendations. Chapter 6. Family Support. Introduction. Program Goals. History and Context. Expansion of Target Population. Growth in the Demand for Services. Wider Variation in the Age of Caregivers. Increasing Cultural Diversity. Evolution of the Meaning and Structure of . Direct Support Workers. Program Goals. History and Context. How the Program Operates. Accomplishments. Strengths and Weaknesses. Major Issues. Current Monitoring and Evaluation Activities. Promising Practices. Recommendations. Conclusion. Accomplishments. Strengths and Weaknesses. Structure. Bibliography. Appendix A. Mission of the National Council on Disability. Endnotes. List of Exhibits. Exhibit 1. 1. Timeline of Major Legislative and Policy Initiatives Affecting People with Developmental Disabilities, 1. Funding Level for DD Act Programs, 1. Federal Funds Leveraged for UCEDD Research, 2. Exhibit 2. 2. Distribution of Total Dollars Leveraged by UCEDDs, 2. Exhibit 2. 3. Percentage of UCEDDs Reporting Work in Each of the Areas of Emphasis, Based on 2. Annual Reports to ADDExhibit 2. Core Functions of UCEDDs. Exhibit 2. 5. Average Funding Level per Center, 1. Evolution of the Councils. Exhibit 3. 2. Actual and Inflation- adjusted#. Intervention Strategies Used in Individual Casework PADD program, 2. Exhibit 4. 2. PADD Client Cases by Areas of Emphasis, 2. Exhibit 4. 3. Sources of Funding for Protection and Advocacy. Exhibit 5. 1. Projects of National Significance, 2. Executive Summary. Originally authorized in 1. Developmental Disabilities Assistance and Bill of Rights Act (DD Act, P. L. 1. 06- 4. 02) addresses the changing needs and expectations of the estimated more than 4. DD). Congress set out to establish a set of programs to improve the lives of people with DD; to protect their civil and human rights; and to promote their maximum potential through increased independence, productivity, and integration into the community. Today, these initiatives have evolved into University Centers of Excellence in Developmental Disabilities (UCEDDs), State and Territorial Councils on Developmental Disabilities (DD Councils), Protection and Advocacy for People with Developmental Disabilities (PADD), and Projects of National Significance (PNS). Over the past 4. 0 years, the United States has witnessed a major transformation of what it means to have DD, moving from a medical model to a social model and involving a truly interdisciplinary approach to identifying needs and delivering supports and services in the community. Despite some identified gains in disability rights, people with DD continue to face considerable barriers to full integration, maximum independence, and self- determination. Furthermore, major programs funded by the Federal Government that affect the lives of people with DD have been established since the inception of the DD Act. Most significantly, the growth of the Medicaid program has shifted the system of supports for people with DD from one that is funded predominantly by state funds to one that is funded predominantly by Medicaid. Currently, there is no national policymaking or funding stream to create effective community- based alternatives to Medicaid- funded supports for people with developmental and related disabilities. Although the original intent of Congress was that the Administration on Developmental Disabilities (ADD) would span agencies that manage the key domains in the lives of people with developmental disabilities, today the power to affect DD programs is concentrated in the Centers for Medicare and Medicaid Services (CMS), and DD policy is generally absent from other departments and agencies. This report addresses three basic questions: What has the DD Act accomplished in the past 4. What are the strengths and weaknesses of the current structure? Is the current structure suited to address the current and future social and policy environment? The report is divided into seven chapters. Chapter 1 introduces the programs and reviews the issues that cut across the different types of grantees. Chapters 2 through 7 describe and analyze each program type in more detail. The programs are presented in the order in which they were legislated, as follows: (2) UCEDDs, (3) DD Councils, (4) PADD programs, (5) PNS, (6) Family Support, and (7) Direct Support Workforce (DSW). To provide a comprehensive review of the DD Act, stakeholders representing consumer groups, advocacy organizations, experts, ADD staff, and self- advocates were interviewed. Focus groups were held, and documents produced by advocacy groups, researchers, and ADD grantees, annual reports, monitoring and technical assistance reports, and five- year plans were reviewed. A panel of stakeholders was consulted monthly. Major findings include: The DD Act has evolved in a nation whose expectations, attitudes, policies, and services for people with disabilities have changed and continue to change. Congress established a three- pronged approach, with each network partner (used in this report to mean UCEDDs, DD Councils, and PADD programs) having a distinct role. The UCEDDs provide research to identify successful community- based alternatives and train practitioners and leaders. The DD Councils advocate for, and educate policymakers on, laws, regulations, and policies to enhance community living. The PADD program uses advocacy skills and legal avenues to enforce the laws. The DD Act, in conjunction with self- advocates, families, other advocacy groups, state and local governments, and other stakeholders, has changed the way people with DD live. In many ways, it has been a remarkable change. The majority of professionals, families, and self- advocates interviewed for this report concur that people with DD lack access to supports in the community to ensure adequate access to health care, housing, and employment. Significant issues remain in some areas, including transitions from school age to adulthood, use of assistive technology, and support for children with disabilities in foster care. Most of the current challenges can be reduced to four underlying issues: the system is complex and fragmented; services vary dramatically by state; long waiting lists restrict access to services; and attitudes of the public are outdated. The ADD is dislocated structurally. Most notably, within HHS CMS has the primary responsibility for services and supports to this population. In the Department of Education, the Office of Special Education and Rehabilitative Services funds and supports disability- related programs. ADD appears to lack influence beyond the DD Act programs themselves. ADD is a small office within the HHS Administration on Children and Families (ACF).
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